Posts Tagged ‘neuroepithelial’

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He who attempts to destroy my brainerin…

July 8, 2017

 

Fuckin Jules Motherfucker

Hi Bwian. I can’t believe we’ve known each other for 40 months. It’s so nice of you to unexpectedly show up 10 months after your last appearance. Last time they had to keep me awake and talking during surgery while zapping my brain to ensure I retained my ability to understand and communicate language. I appreciate that.

Since then I’ve been on a shit ton of chemo. You didn’t care though. Just popped your treacherous head in anyway. And your timing…aah, couldn’t be better. But, hey, thanks for teaching me to better deal with adversity.

Well, Bwian, I can’t say you aren’t persistent but I have to admit that you are a sucker punchin’ son-of-a-bitch.

You know what though? That’s fine too. I will fight you with great vengeance and furious anger – tooth and fucking nail, everything I’ve got. I’ll have you pulled out and sliced while any leftovers are slowly poisoned for as long as it takes. I hope you enjoy.

Talk to you later, Bwian,

Mike

 

*Note: I originally used a Calvin & Hobbes cartoon, but was advised against its use by the Andrews McMeel Universal Digital Marketing Manager of Publishing. Forgive me Bill Watterson. I promise I make no money off of my C&H use.

**Happy belated birthday Bill Watterson!

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Hey, Perd! What’s the werd?!

October 5, 2016

 

 

I beg forgiveness from all my loyal followers! I have no excuse and I know you’re all literally dying to hear what’s going on in my world!

The judgment has come down regarding my latest iteration of brain cancer.

judge-perd

Last week my wife and I saw my oncologist to receive the information from the pathology report concerning whatever they pulled out of my noodle. Firstly, I’ll do a recap of my last diagnosis to remind everyone. On February 26, 2014 Dr. Litofsky at MU’s Ellis Fischel Cancer Center performed surgery and found a baseball-sized mass in my left frontal lobe. The pathology report came back with the malevolent triad of Stage I DNET, Stage II Oligodendroglioma, and Stage III Astrocytoma.

My oncologist, the much beloved and much tattooed, Dr. Doll prescribed 6-weeks of concomitant radiation/chemotherapy (radiation and chemo at the same time) followed by six more month of regular chemotherapy consisting of a 300 mg dosage of temozolomide per day for 5-days followed by a 23-day recovery period. The recovery period allows the body to recover new cells after having effectively just entirely stopping cell growth for almost a full week.

 

 

This time only one of the tumor types has returned. There’s no sign of the DNET, or the Stage III Astrocytoma. This time the traitor has turned out to be a quarter-sized Oligodendroglioma tumor. That doesn’t sound too bad but this time it had graduated. This Oligodendroglioma is Stage III. I’ll write another blog with more learning on my current diagnosis. Honestly, could be better, but it also could be much worse. My prescription for this round doesn’t call for any hair ejecting radiation but it does involve 1 full year of chemo. The dosage is 320mg for five days with 23 days off to recover – an amount similar my 2014 double dosage of 300mg. Luckily, I seemed to handle that fairly well. So, I’m pretty positive about it!

I’ll keep yinz all posted!

 

**A shout out to my radiation-oncologists and their team: Dr. Johnson, Dr. Westgate, and the whole radiation team that treated me.

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Back on the Chopping Block

August 23, 2016

steveperryWell, boys and girls, friends and neighbors, you may remember a couple of months ago that I said I had a less than ideal MRI that indicated a small but suspicious mass. It could have been a return of my tumor or simply radiation necrosis. Well, the results are in after another scan…they still don’t know until they take it out, but there was more growth than my neurosurgeon, Dr. Chamoun, was comfortable with so, I’ll be going back under the knife in a few weeks. The mass is very close to the speech center of the brain. To try to avoid negatively affecting my speech I’ll be awake during the surgery as they ask me questions and keep me talking. Should be a hoot conversing while someone has their fingers buried deep in my skull. (Period=Sarcasm) And everyone who’s ever met me knows I never shut-up. (note the period) But, really, what else can you do about it. I was given the option of being asleep but in the end I want the best results, so it was my choice. Not that it isn’t a creepy choice to be given! I’ll keep yinz posted! When on a Journey never forget the the immortal words of Steve Perry… (you may all commence the clinched-fist crescendo).

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The Story of the Disconcerting Brain Scan or First Hand Schooling in Hume’s Problem of Induction

July 4, 2016

hume

(Wipe that smug look off your face!)

On June 23rd, Holly and I went in for my quarterly MRI check-up. I laid perfectly still on the MRI table for the usual 20-minute scan before they added a contrast to my veins and scanned for another 10-minutes. When the scan was finished we went upstairs to my neuro-oncologist to get the results, assuming they would be the identical “all-clear” that we were used to over the past two years. It turned out to be a classic example of  my homie David Hume’s problem of induction, “That the sun will not rise tomorrow is no less intelligible a proposition…than the affirmation, that it will rise.” We just weren’t expecting anything this soon. Lesson learned, Mr. Hume. Lesson learned.

Turns out there was a tiny bit in my brain that was taking up contrast and lighting up. Holly knew something was up when they took us back almost an hour early. My doctor, Sarah Taylor, said they hadn’t got a report from the radiologist yet, but because it was white on the scan that she was concerned. She made an appointment with a neurosurgeon for the following Monday and said that she’d present it to the tumor board for discussion Monday morning.

“Boo! Hissss!”

No customary celebratory sushi for the Staytons.

We went in to the neurosurgeon, Dr Chamoun, on Monday and it was more of the same. No decision could be made without cracking my skull back open. But there were only three things it could be:

1.) Slight benign tumor growth. *M’eh not too bad…*
2.) Malignant tumor recurrence. *Worst possible scenario!*
3.) Radiation necrosis. (Dead cells only now appearing from my radiation treatment 2 years ago. Apparently this is not abbynormal.) *Best possible scenario??*
 
A consensus was reached between Holly, Dr. Chamoun, and myself that we should just watch it more closely. So, instead of an MRI every 3 months we’re going to go with every 6-8 weeks, now. The doc’s want to watch a.)if it continues to grow, b.) the rate of growth, and c.) if it does continue to grow they want to note if and when the growth tapers off. If it’s necrosis the growth may continue for 6-9 months before eventually tapering off as the body gets rid of the dead cells. If it’s a tumor it will continue to grow. “yea.”
 
Neither the doctors nor I think the surgical risks (infection, anesthesia problems, clots, stroke, seizures, etc.) nor the spot’s size or location (it’s apparently close to the speech area so they would have to keep me awake to ensure they don’t cut out anything important) are worth slicing me back open just yet. Especially if it turns out to just be necrosis.
 
It’s weird, at 37 years old, when you get told your best option is just dead brain cells. Who ever thought, right? I’ll keep you all updated, me droogies!

 

Hume, David. An Enquiry Concerning Human Understanding (1772). Hackett Publ Co. 1993; Chapter on Cause and Effect.

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Nobody tells me nothin’…

June 6, 2016
banner_headforcure
Apparently it’s National Cancer Survivors Day. Nobody tells me nothin’.
Well, in honor of this day, team Nogginators have assembled to participate in the MetroKC Head for the Cure 5K event on August 28th to raise funds expanding medical research for brain cancer treatments! With over 120 different types of brain tumors, and that pesky blood-brain barrier, effective treatments are extremely difficult to find. So, we need all the help we can get!
Come participate in the 5k, by joining the Nogginators! Or help provide support for the 700,000 brain cancer survivors, such as myself, by donating to the Nogginators! To do so click on the Head for the Cure banner at the top of this page. There will be a welcome site with (2) buttons near the bottom of the page that allow you to participate, “Join Team” and “Donate“. Please give us a hand by donating at whatever level you’re comfortable with.
The Nogginators thank you for all your support!
More updates and information coming soon…
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Head for the Cure

August 21, 2014

IMG_0351.JPG

(The little bastard causing all this trouble.)

Brain cancer, though rare, is the number two cancer killer of children, leukemia being number one. It also affects adults such as myself, usually presenting no symptoms until it’s malignant. Because of its rarity (only 688,000 cases in the US) funding for new treatments is hard to come by. We live in a technologically advanced world but my chemo is the latest drug and it’s over 14 years old. But the brain is especially difficult to treat because the same protective membrane that prevents viruses and bacteria from infecting the brain also prevents medication from reaching the tumor. The difficulty of breachng the blood-brain barrier makes research more costly and difficult. But as I’ve said before, I want to save the boobies, but I need my brain to enjoy them!

If you want to help save the brains so we can continue to motorboat the boobies (we know you ladies love that!) then send a couple of bucks here:

Making a Difference for Mason and Mikey

All donations are tax deductible, go toward raising brain cancer awareness, and funding clinical research trials to find more effective treatments for all brain cancers.

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Results of My Treatments

May 26, 2014

Tomorrow we go in to find out if my previous chemo and radiation treatments are working as they should. Though six more months of chemo is guaranteed, I’m really hoping for no more radiation for a long time!

(RT Visual tour!)

So much radiation that the size of the lead vest it would take to protect the rest of my body would crush me.

Creates so much radiation that the size of the lead vest it would take to protect the rest of my body would crush me. Which would be a bit counterproductive.

Comfy in my "pillow."

Comfy in my “pillow.”

Caging my face in to keep me from wiggling around while they're shooting my brain.

Caging my face in to keep me from wiggling around while they’re shooting my brain.

Il machina!

BZZZZT!!!

Where big brother keeps an eye on me.

Where big brother keeps an eye on me.

Angry cuz I got a waffleface...

Angry cuz I got a waffleface…

My Very Important Cancer Patient (VICP) card. Hopefully everything worked as planned and I won't need this again for a while.

My Very Important Cancer Patient (VICP) card. Hopefully everything worked as planned and I won’t need this again for a while.

 

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